The National ALS Registry
It’s important that all people with ALS are included in the National ALS Registry. By collecting, managing and analyzing data about people with ALS, we’ll get a more accurate picture of the disease—and a better chance at fighting it. Be part of changing the future of ALS.
Because learning more about ALS is an important step in the battle to defeat it, the Agency for Toxic Substances and Disease Registry (ATSDR) has developed this registry to gather information from people who are living with ALS. This information can help doctors and scientists learn more as they work toward a cure.
Have a specific question you need answered?Email Us a Question
- Estimate the number of new cases of ALS each year
- Estimate the number of people who have ALS at a specific point in time
- Better understand who gets ALS and what factors affect the disease
- Examine the connection between ALS and other motor neuron disorders that can be confused with ALS, misdiagnosed as ALS, and in some cases, progress to ALS
- Provide updated links for participant resources like ALS clinical trials and
- Improve care for people with ALS
Visit the Registry website to learn more.