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Les Turner ALS Resource Guide

The third edition of the Les Turner ALS Foundation Resource Guide provides information and resources for ALS patients, family members, caregivers and health professionals. Assembled by the staff of the Lois Insolia ALS Clinic at the Les Turner ALS Research and Patient Center at Northwestern Medicine and members of the Home and Community Services Team, the Resource Guide is available online for viewing, downloading and printing.

Reading all 11 sections at one time can be overwhelming to persons with ALS and their families. We highly recommend that you focus on the information that pertains to your present circumstances.

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Resource Guide

Updated Resource Guide coming soon!

Additional Resources

Please click here to download an extensive list of additional resources. This list is divided into seven sections: bereavement, books for and about children, cookbooks for ALS patients, disease management and coping, medical textbooks, personal stories and DVDs. While some of these items may be out of print, you can often obtain them via your local library or retailers such as

This list is provided as a service to the ALS community. The Les Turner ALS Foundation does not endorse or recommend information, products or services contained in these materials. You should contact an appropriate medical professional before making decisions about treatment.

Services Offered:

Home & Community Services

Home & Community Services Team

The Foundation’s Home and Community Services — which include telephone and in-person support, educational resources and patient and family advocates — are available at no cost to ALS patients and their families in the Chicagoland area and portions of northwest Indiana.

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Lois Insolia ALS Clinic

Lois Insolia ALS Clinic

At the multidisciplinary ALS clinic, trained specialists use a team approach to provide comprehensive treatment. They are dedicated to the total care and support of people with ALS, their families and caregivers. During a visit, patients meet with several members of the team, and each provides input regarding assessment, care planning, education and other health care needs.

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National ALS Registry

National ALS Registry

The Les Turner ALS Foundation is a partner with the National ALS Registry, a program to collect, manage and analyze data about people with ALS and to provide clinical trial information to people living with ALS. It is important to include as many people with the disease as possible to get the most accurate information. Be part of changing the future of ALS.

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