Support Services

Home & Community Services

The Foundation’s Home and Community Services are available at no cost to ALS patients, their families and caregivers who reside in the Foundation’s service area, which includes, Chicago and its surrounding communities as well as portions of northwest Indiana.

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Services Include:

  • Home visits by Patient and Family Advocates
  • Telephone, e-mail and referral support
  • Support group meetings for patients, families and caregivers
  • Educational materials and programs
  • Coordinate care with providers at the Lois Insolia ALS Clinic

Our Patient and Family Advocates consist of four nurses and two social workers who can:

  • Visit in the comfort and privacy of a person’s residence to provide ongoing information and support and coordination of services
  • Schedule virtual appointments, face-to-face from the convenience of one’s home via Skype or FaceTime
  • Enhance the continuity of care between clinic visits
  • Provide ongoing disease education and address specific concerns
  • Provide practical information on quality of life and daily living
  • Evaluate home environment for safety, adaptations and equipment needs
  • Facilitate communication between patient, family members and healthcare team
  • Educate regarding disability, Medicare, Medicaid, private insurance and other financial options
  • Guide access to care through state programs, caregiver services and explore additional means to maximize assistance
  • Assist with advanced directives, including living wills, medical power of attorney and other end-of-life issues
  • Provide social service counsel and intervention to improve communication and assist in conflict resolution
  • Collaborate with home health agencies, hospices and other community organizations
  • Conduct in-service education for home health agencies, hospices, case management groups, assisted living facilities, nursing facilities, employers, schools and other community organizations

Additional Program Services:

*For more information about these programs and eligibility requirements, please contact our Director of Patient Services, Judy Richman, RN, BSN, at 847 679 3311 or The Foundation’s goal is to help people living with ALS and their family members deal with all aspects of this difficult disease.

To view the bios of our Patient and Family Advocates, click here.

Services Offered:

Home & Community Services Team

The Foundation’s Home and Community Services — which include telephone and in-person support, educational resources and patient and family advocates —  are available at no cost to ALS patients, their families  in the Chicagoland area and portions of northwest Indiana.

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Lois Insolia ALS Clinic

Lois Insolia ALS Clinic

At the multidisciplinary ALS clinic, trained specialists use a team approach to provide comprehensive treatment. They are dedicated to the total care and support of people with ALS, their families and caregivers. During a visit, patients meet with several members of the team, and each provides input regarding assessment, care planning, education and other health care needs.

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National ALS Registry

National ALS Registry

The Les Turner ALS Foundation is a partner with the National ALS Registry, a program to collect, manage and analyze data about people with ALS and to provide clinical trial information to people living with ALS. It is important to include as many people with the disease as possible to get the most accurate information. Be part of changing the future of ALS.

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Hope and help for people with ALS.

Your contribution helps support nearly 90% of the Chicagoland ALS population.