Support Services

Dan Nelson ALS Respite Fund

Sheila McCullough generously and thoughtfully established this fund in 2012 to honor the memory of her husband Dan and his first caregiver, Thea. “Thea is Dan’s older sister and the reason I wanted to put this fund together.” The Fund is designed to provide grants for short-term respite care for families with limited resources. Respite care provides the primary caregiver with time away from their care duties. This promotes well-being for both the caregiver and person with ALS and helps prevent caregiver burnout. Participants in the program also receive a visit from one of the Foundation’s ALS Patient and Family Advocates.

For more information, to apply or for eligibility requirements, contact Judy Richman, RN, BSN, Director of Patient Services or call 847 679 3311.

Pictured: Dan Nelson and his sister, Thea. Dan passed away from ALS in January 2012.

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Services Offered:

Home & Community Services

Home & Community Services Team

The Foundation’s Home and Community Services — which include telephone and in-person support, educational resources and patient and family advocates —  are available at no cost to ALS patients, their families  in the Chicagoland area and portions of northwest Indiana.

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Lois Insolia ALS Clinic

Lois Insolia ALS Clinic

At the multidisciplinary ALS clinic, trained specialists use a team approach to provide comprehensive treatment. They are dedicated to the total care and support of people with ALS, their families and caregivers. During a visit, patients meet with several members of the team, and each provides input regarding assessment, care planning, education and other health care needs.

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National ALS Registry

National ALS Registry

The Les Turner ALS Foundation is a partner with the National ALS Registry, a program to collect, manage and analyze data about people with ALS and to provide clinical trial information to people living with ALS. It is important to include as many people with the disease as possible to get the most accurate information. Be part of changing the future of ALS.

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Hope and help for people with ALS.

Your contribution helps support nearly 90% of the Chicagoland ALS population.