2016 ALS News You Can Use

On Sunday, April 10, over 40 PALS and family members attended the 2016 ALS News You Can Use annual patient meeting.  This year’s topic was Prepare to Care:  Legal Planning When Living with a Chronic Medical Condition, presented by attorney …

Phase 3 Clinical ALS Drug Trial

The Foundation is pleased to announce the start of a new clinical drug trial for ALS at the Lois Insolia ALS Clinic at the Les Turner ALS Research and Patient Center at Northwestern Medicine.  VITALITY-ALS is a Phase 3 clinical …

Recap: Hope Through Caring Gala

At this year’s Hope Through Caring Gala, 450 guests honored Madeleine and Joe Glossberg and Joan and Paul Rubschlager for their commitment in the fight against ALS. The packed house also celebrated those courageously living with ALS and remembered those …

Hear about the next generation of ALS researchers

Funding that ALS researchers at the Les Turner ALS Research and Patient Center receive has a huge impact on their discoveries. Joint funding from the Foundation along with other ALS sources has become crucial as researchers make translational progress toward …

MMWR in Brief

The Center for Disease Control and Prevention’s MMWR in Brief summarizes key points from “Prevalence of Amyotrophic Lateral Sclerosis – United States, 2010-2011.” New information in this report includes the first prevalence estimate and description of demographic characteristics of ALS …

Registry Adds Two New Surveys

The Agency for Toxic Substances and Disease Registry (ATSDR) added two additional risk factor surveys to the National ALS Registry. The new surveys ask about head trauma and health insurance coverage. There are now a total of 17 surveys designed …

Agency for Toxic Substances and Disease

ATSDR’s mission is to serve the public through responsive public health actions to promote healthy and safe environments and prevent harmful exposures. In 2008, Congress enacted the ALS Registry Act to gather and organize information about who gets ALS and …